The journey so far has been, dare I say, relatively without incident. From Anna’s diagnosis, week by week we have slowly started to understand the gravity of what we are facing.
Recently, I spoke with a woman who has had Type 1 Diabetes for some time and was told that “it was my daughters’ diabetes and decisions should be hers”. I found this interesting and it got me thinking.
Is it my daughters’ diabetes alone? Sure, it is her pancreas, however, we as her parents and her younger sister, don’t see this as ‘her diabetes’. We take the position that although it is Anna who has Type 1, we were all diagnosed that day and we share her diagnosis.
We have managed to smile through nerve wracking HbA1c tests, discussions with nurses, educators and her endocrinologist. We have held hands and reassured each other that ‘we have got this’. We have had family discussions about what my youngest daughter, who is 11, would need to do should Anna become unconscious and the procedure to follow.
We have treated night time hypo’s, daytime hypo’s. We have had discussions around food, insulin amounts, what to do when my daughter attends the movies with her friends and frank conversations with parents, watching their eyes widen when I show the Glycogen and what would need to happen. Trying to reassure them that I would know there was a problem before they did, as I sleep as light as a feather these days and wake just to check her level on the Dexcom app.
We have met with the school and her teachers regarding care plans, exams, sport and the procedure for her MDI’s. We have met with the hospital and sales reps about pumps. We have talked to friends and their families.
We as a family and especially my older daughter, are doing well. She is positive, happy and motivated to deal with anything that is thrown at her. With support of course.
I don’t think of this as ‘my daughters’ diabetes’.
The choices we make many times a day, day after day require thought, consideration, research and then we double check. We are wanting to teach our daughter, along with the help of her educators and endo, the best pathways and the best choices to make based on where she is at the present time.
Our daughters’ journey is going to change, many times. We know that and we are willing and able to ‘zig when Type 1 zags’.