It seems like an eternity since I put my thoughts out there for all to see. COVID really put my world in a spin but I am happy to say, I am back and it feels good.
I have been thinking alot lately about what is my purpose? What are the reasons for me continuing to put myself out there and fighting for the T1D cause. There are times that I don’t even know why I am doing it anymore because there are only so many times you can be blocked or not listened to that you start to believe your own insecurities. It’s a messy web of health care systems, social media, state and federal that all seems one big mess at times and I’m trying to find my way though it all, blindfolded.
Then there is that moment. The moment that happens not just when you least expect it but also just when you really need it. Is this a sign from the Universe telling me to keep forging ahead?
My daughters’ opthalmologist, Professor Frank Martin, a highly regarded and respected man both in Australia and internationally, who has written articles and journals and with a great many years experience asked me how I was going with my T1D Hub project. I felt embarressed to tell him that that it wasn’t moving in the direction I was hoping for and that I was feeling dissolutioned. I told him that it seemed like no one was interested in the message of peer support and how important it is. That structured transition and follow up is vital to young people and that families of those that care for Type 1’s also need support because they reaching breaking point.
Professor Martin listened and nodded and simply said to me “keep going”. He told me a story of his family member who lived with Type 1 and also a current patient he has (who is now in her 40’s also with Type 1 as well learning difficulites) continues to see in his adolescent practice because he knows that if he doesn’t, she will fall through the cracks and she won’t actively seek the care she needs. Unbelievable when you think of it.
These stories are just what I needed to hear at that moment because if a person of his position, qualifications and experience suggests I keep going, then I keep going. I know that I am doing this because it is important. There will be moments and days where I question myself but then I think of all the kids, parents and adults who need people like us keep going. To keep having conversations and talking about Type 1 Diabetes.
We are all part of this community and it takes a community to create change. Start the conversations, talk to people and support those in need where you can. Managing a Type 1 Diabetes diagnosis is hard so please reach out of you need support or just to say what’s on your mind. One gesture, no matter how small, can make such a difference to someone.